Announcing our Grant to Boston Children’s Hospital!

Join us for the 5th and FINAL Running for Research 5K Run/ 3K Walk

November 10th, 2019

We Are The Chiari Group.

Since 2008, The Chiari Group has been raising funds for Chiari Malformation research.  We began by supporting research that addressed the challenges Chiari created for the pediatric population.  While the symptoms of Chiari and the level of suffering can vary greatly, the most common challenge for people with this condition is finding effective pain relief. 
Therefore, we are currently focusing our efforts on funding non-addictive pain management research. 

Our goal is to improve the quality of life for all those suffering from the pain that Chiari can cause. 
Beyond helping those with Chiari, this research will also aid anyone suffering with chronic, debilitating, pain.

What is Chiari Malformation?

Chiari Malformation is a set of neurological conditions which affect approximately 1 in 1,000 people.  It can cause debilitating headaches, neck pain, weakness and numbness in limbs, balance and visual disturbances and a host of additional symptoms.

Chiari malformations are located at the base of the skull.  Part of the brain, the cerebellum, descends out of the skull into the spinal area.  This results in compression of parts of the brain and the spinal cord and disrupts the normal flow of cerebrospinal fluid.

We may look fine on the outside, but you should see us on this inside. It’s like a war zone. There are no good treatments to manage the severe pain. Every pain medicine has side effects or is addictive. We need to find a better solution — we need to fund pain management research!
— Cass Boehm

Running for Research 2019

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We are excited to share that we will be donating our hard-earned funds to Boston Children’s Hospital, the nation’s #1 children’s hospital for neurology and neurosurgery.

Our funding will be used in two ways:

  • To organize a yearly Chiari Day, which will bring patients, families, and medical professionals together to exchange ideas, share insights, and discuss the latest research developments.

  • For a collaborative research effort between the Neurosurgery and Pain Research teams at Boston Children’s to gather data and better understand pain associated with Chiari and how to manage it.

We anticipate awarding a grant of $150,000 to Boston Children’s in early 2020. This grant to Boston Children’s holds great promise for improving the quality of life for those with Chiari. Join us in reaching our goal making this grant as generous as possible.

Many thanks for your support!