We Are The Chiari Group.
Since 2008, our volunteer group has helped fund pediatric Chiari Malformation research. Currently we are focused on supporting studies specifically related to pain management. While Chiari symptoms and level of severity differ from patient to patient, pain continues to be a common thread. There is a pressing need for effective pain management options
At this time, we are carefully vetting research grants that are exploring alternative avenues for pain management. The contributions received from the 2015 and 2016 Race for Research will be combined into one grant.
What is Chiari Malformation?
Running for Research 2018
Please join us for this year’s race on November 11, 2018
Registration available online through Active.com and on the day of the race.
Cash, checks, and credit cards accepted.
7901 Meadowbrook Lane
Chevy Chase, MD 20815
Thanks to all who came to our 2015, 2016, and 2017 races! Each year we
have increased the number of our participants; last year we registered 362 people and raised over $20,000! This would not have been possible without your continued support.
A special thank you to our devoted team of 30+ volunteers who work tirelessly to plan and execute each race. Without them, this inspiring event would not be possible. In addition, we are greatly appreciative to our donors, in particular Giant Food, who has supported us for the past three races.
Chiari Malformation affects 1 in 1,000 people. This complex condition is poorly understood in the healthcare community. For those who are more familiar with Chiari, there is rarely consensus on the most effective treatment plan. There is no cure and most often brain surgery is the only option offered.
Chiari Malformation is:
- A condition affecting 1 in 1,000 people
- A condition where sufferers look healthy but suffer with immense chronic, debilitating, pain
- A condition which often causes suffering for years before being correctly diagnosed
- A condition which is largely unknown by many in the healthcare community. For those who are more familiar with Chiari, there is rarely consensus on the most effective treatment plan
- A condition with more questions than answers for patients, families, and healthcare professionals